How is my identity protected?

Click on the video below to hear a real story about safety and ethics in clinical trials.

  • Researchers must follow federal laws that protect your privacy.
  • Only approved study team members can see your personal health information.
  • Some studies collect information that can identify you. Research staff will remove this information so that it cannot be linked to you. For example, research staff may replace your name with a special code that is not connected to you.
  • Researchers will not publish information that can identify you.

Click here to read the NIH Clinical Center’s Patient Bill of Rights